So. As it turns out, the f*cking cyst was never actually a f*cking cyst; it was a f*cking tumor. Something called a borderline malignancy. Now I don't know about any of you, but I don't typically like to hover anywhere near the borderline of things labeled malignant. So you'll understand, I hope, why I have not yet mailed out invitations to the party celebrating this particular diagnosis.
Borderline tumors of the ovary, when they are truly just that and truly contained to just the ovary, are unobtrusive little fellows and almost never create any further problems once they've been removed. They can, however, come back, and they can spread, and they can (not commonly, but sometimes) turn into full-on cancer. The generally accepted treatment, as you'll see noted in the WebMD link above, is surgical removal of the tumor and/or ovary and staging/biopsies of surrounding tissue.
Hey! Guess what Dr. Furry, having assumed the grapefruit-sized mass in his hand was a benign cyst until subsequent pathology reviews completed by his peers AFTER I WAS ALREADY SEWN BACK UP came back otherwise, didn't do? If you guessed "take even half of a glance at anything other than the ovary he hacked out of my body," you win!
At my post-surgery followup exam, Dr. Furry shared this news with me as if he were informing me that the breakfast counter was out of blueberry muffins, and would I consider a lemon poppyseed instead? He was all "you probably have nothing to worry about -- just be vigilant about getting your annual exams." Naturally I went home and promptly applied for an NSF grant to fund the 24/7 internet research I was to conduct for the next solid week. The husband and I, armed with the best PDFs that a liberal arts professor's academic database subscriptions can buy, then went back in for a second appointment to ask Dr. Furry some questions, at which time Dr. Furry was all "children, please, I am a Medical Professional and you cannot surpass my knowledge with google-searching," and we were all "BAM, jerk, do you want to go over the stuff from Hopkins first or would you rather start with these 17 PubMed articles?" For half the concerns we brought up, he could offer little more than a shrug. So we got a referral to an oncologist for a second opinion.
Apparently, the approach to managing this kind of tumor is controversial. Lots of women get complete hysterectomies. Other women just get the tumor removed and hope for no recurrence. What's key, though, in determining what approach to take is doing a complete exploration of what's going on inside, taking bits of tissue from a bunch of places and testing them for signs of spread. Which Dr. Furry didn't do. Because he thought it was a benign cyst.
Fast forward to this part Tuesday, when we drove an hour to the fancy cancer center -- which I'm pretty sure is the official Saddest Place On Earth. Everyone there was very kind, but really: what a hideous, awful place. I want to cry when I think about how familiar some of those patients seemed to be with the hallways and waiting rooms. Anyway, long story short: oncologist looked horrified that I had been told simply getting my annual exam would be an acceptable approach to handling the situation. She's ordering another review of my pathology and running some other tests. Apparently Dr. Furry ruptured the tumor while operating (what - did I forget to mention that? Maybe that's because SO DID HE) which also could complicate the situation. She wants to do another surgery, this time to take all those tissue samples that Dr. Furry should've taken, as well as to remove my appendix -- which is often linked to the particular type of borderline tumor I had.
I had a CT scan this morning, one of the tests the oncologist ordered. Because apparently cancer doctors like to subject you to procedures that, you know, give you cancer. Call it job security. The dude administering the scan was young and ridiculously attractive, and I was all "awesome, so happy I haven't shaved my legs for two weeks," but then I stopped caring when I learned that Hot Radiation Doctor was also Doctor Who Thinks He Knows How To Put In An IV But Totally Doesn't And Has Tiny Testicles That Keep Him From Calling An ER Nurse Until He Has Made The Patient Suffer Through Three Failed Attempts. This bastard sucked. And of course, after failed attempt #2, I started Ugly Crying, because that's just what I do. By the time Anna the ER nurse arrived I was covered in snot and she was visibly annoyed by me and all that I stood for. But she got the IV in in about 3 seconds so I honestly wouldn't have cared if she had openly mocked me and broadcast it via webcam.
I go back to the oncologist in a couple of weeks and we have to decide whether or not to do the second surgery. After which time I had better be in for some serious spans of nothing-to-report. I know there are tons of people dealing with much worse situations than this, but a pain in the ass always seems like the HUGEST pain in the ass when it's your own ass that's pained. Put that in a Hallmark card and sell it.
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19 comments:
Oh...my GOD. First of all, I hope you'll be okay and that the long span of nothing-to-report commences forthwith, but second, WTF'ingF, Dr. Furry?
Holy shit. What a crock. This blows. This is way more than a pain in the ass. Man. Suck. I will definitely be thinking of you...
Oh my god, Melinda. I'm so sorry you're dealing with this, and I'm sending so many good thoughts your way about how you will be FINE. I'm also sending horrible thoughts into the universe for Dr. Furry. Seriously, W in the F? That is truly terrifying. But good for you for being your own health advocate. Damn.
Dude! That sucks! I will be thinking good thoughts that all is well despite your doctor's stupidity.
HOLY EFF DUDE.
WHAT THE EVER LOVING HELL?
Can you sue for negligance? Because again, WHAT THE HELL?
My GOD I'm so sorry you're going through this.
OMGWTFFFFFFFFFFFFFFFFFFFF. I am staggered by all the bullshit in this one entry. Love to you.
Holy shit. But go on with your bad librarian self and the PubMed smackdown of Dr. Furry. Will be thinking of you a lot and really hoping for the nothing to report post soon.
I wish you could actually apply for grants for doing research that your doctor should be doing for you. Dr. Furry just sounds like a complete assmuppet.
Oh honey...
That's why I had my hysterectomy after I had the big child. Same tumor.
If you want to talk about it or have questions from someone who's been there, email me, OK?
Smooches...
I am so sorry your surgeon was incompetent and uncaring in several aspects of his job. Hopefully you are in good hands now. I worry about all those women out there who take everything their MD's and others, tell them at face value, or who don't have the resources to get better information and care. Be well. CJ
Dude, that SUCKS. Your blog always makes me laugh, so I wish I could at least, I don't know, make you laugh, but I've got nothin' - that just plain sucks.
I actually JUST got home from a doctor's appointment myself and was referred for an EMG (the very thought makes me want to cry like a baby) and when I got home the dog had left an elephantine pile on the floor. So, I thought I'd read some blogs to cheer myself up from the thought of needles in my muscles and electrical shocks and cleaning up dog poo...and well, yours is way worse. I don't think that makes either of us feel better as your last paragraph sums it up perfectly - what a pain in the ass!
Collegetown USA is where all the officially shitastic doctors go when the rest of the country won't have them, apparently.
Good for you for having the courage to question & push for better answers. So many women settle for the "there, there" and a pat on the back and I think it's awesome that you took control of your health & healthcare. You're an inspiration.
Ah JEEZ, Dr. Furry, you big idjit. I can't believe this incompetence and the brass balls it takes to shrug you off. Grrrr... So sorry you're dealing with this. Keep us posted on the nothing-to-report.
So glad you have the smarts to be Dr. Furry's worst nightmare. Really. So many people just don't.
Will be thinking of you. Tie a know and hang on through this.
Jan
I say we convene for a smackdown of Dr. Furry.
Lady Colony SWAT Team-style.
I'm taking some small comfort from the fact that y'all are taking charge of your care, and that your oncologist doesn't sound like an asshat. Hang in.
Seriously, what does it take to get competent medical care AND good bedside manner? I am totally pissed off on your behalf.
I can only imagine how scary and difficult this must be for you and your family. I am so totally impressed that you've managed to keep it together through all this. You get the Mom of the Year, hands down, no contest.
I'm praying for you and your family, and my mom thought we should go throw garbage in Dr Furry's yard.
--Elizabeth (sister-in-law)
I am not okay with this. I want to make my position on tumors clear. Also, you need to do some doctor shopping. And plus, I love you and hope all is well very VERY soon. You don't need this shit.
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